Skin Picking in People with Prader-Willi Syndrome: Phenomenology and Management.
Authors: Bull LE, Oliver C, Woodcock KA
Journal: Journal of autism and developmental disorders
Neurodevelopmental disorder
Prader–Willi syndrome
Self-injurious behaviour
Skin picking
Adolescent
Adult
Child
Disease Management
Female
Humans
Male
Obsessive-Compulsive Disorder
Parents
Prader-Willi Syndrome
Self Care
Abstract
Skin picking is highly prevalent in people with Prader-Willi syndrome (PWS). This study addressed the temporal (frequency, duration) and wider characteristics (e.g. type of skin picked, apparent motivations, or management strategies) of skin picking to inform intervention strategies. Nineteen parents/carers who observe skin picking shown by the person they care for completed a semi-structured interview. Results were consistent with previous research but advanced the field by finding that most participants picked skin with an imperfection and that parents/carers most commonly use distraction as a management strategy. Interventions that are behavioural, support emotion regulation and/ or are used in the typically developing population are therefore likely to be beneficial for future research.